Forum    Members    Search    FAQ

Board index » Erfworld Things » LiveRjournal




Post new topic  Reply to topic  [ 26 posts ] 
 
Author Message
 Post subject: Round One
 Post Posted: Thu May 03, 2018 4:10 am 
Site Admin
User avatar
This user was a Tool before it was cool This user is a member of Team Erfworld This user is a Tool! Has collected at least one unit Here for the 10th Anniversary Mined 4 Erf Celebrated Rob and Linda's 1st For when you need it most Clubs Suit Pip
Offline
Joined: Fri Jul 29, 2011 11:55 am
Posts: 34
After having the port placed in my chest/neck, I was rolled back to my semi-private room where Rob was waiting. It was just past 10:15am. I felt a little sleepy yet surprisingly alert. The nurses wanted me to order lunch and remain in bed for at least 2 hours for observation. We told them I couldn’t stay that long because our appointment to start treatment at VCI was scheduled for 11:15am. Fortunately, VCI is about a 15 minute drive from the hospital.

In lieu of lunch, they offered me water and graham crackers with a side of peanut butter to tide me over (I hadn’t eaten since midnight). By 10:45am I was feeling well enough to get dressed so we could get out by 11:00am and head over to VCI.

Rob and I made it to VCI on time. We were taken to a room to speak with a nurse who spent a great deal of time explaining everything that was about to happen, what we could expect, and what to be aware off. She gave us a stack of papers that had the information she just went over with us as well as nutritional information and a 24 hour phone number to call if we needed to contact them.

Then we were escorted to a large room with many patients recliners and visitors chairs next to the recliners lined up along the walls. The room reminded me of the VBS (Virginia Blood Services) where I used to go annually to donate blood.

We were introduced to the nurse that I would regularly see and I took a seat on one of the recliners while Rob sat in the chair beside me. She prepped me for my treatment and basically repeated what the first nurse had said.

My treatment is administered in two phases. The first part is administered through my port by the nurse there at VCI. It takes 2 hours to transfuse. They also give me a needle in my lower abdomen with an anti-nausea/vomiting preventative.

The second part is administered by a pump that is hooked up to my port and placed in a fanny pack strapped to my waist. The second part takes 46 hours to administer and transfusion takes place at home.

The pump is round and although it’s a yellowish brown color and not red and white, it reminds me of a Poke Ball so that’s what I call it. I should probably call it my Power Ball. XD

The chemo treatment is not stored on the shelf, it has to be prepared “to order” on the premises in their pharmacy. That took up probably 60-90 minutes of our time there. In the meantime the nurse offered us some small snacks and something to drink. I chose the peanut butter crackers. I’m not sure why I chose orange juice to drink with the peanut butter. Rob only wanted water.

The first part of the treatment went well and I experienced no ill side effects. I frequently needed to use the bathroom which required me to roll the IV stand and monitor with me. That was a treat.

When that part was completed they hooked me up to my Poke Ball and sent me home.

There are all kinds of hazards to be aware of when taking your chemo home. You have to be on the look out for leaks from the pump or the port and to know what to do and how to handle it. Disposable surgical gloves are our new best friend. Fortunately I did not experience any chemo leaks.

Another thing I learned is, because I’m eliminating chemical waste, I have to flush twice after every bathroom use. If I have night sweats (which I did twice) I have to wash all my bedding separately from the rest of the laundry (because my sweat also has chemicals in it) and wash it in hot water, twice.

I have to stay out of the sun. If I go out, I need to keep everything covered and wear a hat. I really don’t like hats but it’s a small price to pay under the circumstances.

One side effect I am experiencing is hyper sensitivity to cold. If I touch something from the refrigerator it feels like ice. If I touch ice or something from the freezer I get this jolt-like shock sensation in my fingertips. I can’t eat or drink anything ice cold. No frozen treats. No ice in my drinks. If I eat or drink something cold I get this freeze/burn sensation in my mouth and throat. Room temperature or hot drinks and food is fine. If I wash my hands in anything less than lukewarm water it feels like I’m washing in glacial ice water. It’s all very bizarre.

I guess the needle with the anti-nausea/vomiting med did it’s thing. I’ve been able to eat fairly well and although I haven’t gained but a couple of pounds I’ve been able to maintain my weight and not lose any.

Last Friday we went back to VCI to have the pump removed. It was nice not to be tied to the Poke Ball and fanny pack. I’ll be in “recovery” for 12 days. If my counts are good I’ll start round two on May 9th.

_________________

Just call me Baldino. It's what you get when you combine Balder with Paolino.

  • Tipped by 6 people!
  • Tip this post

    Make Anonymous
  • Top 
       
     Post subject: Re: Round One
     Post Posted: Thu May 03, 2018 7:33 am 
    This user is a Tool! Here for the 10th Anniversary Has collected at least one unit Erfworld Bicycle® Playing Cards supporter Was an active Tool on Free Cards Day
    Offline
    Joined: Fri May 06, 2016 3:31 pm
    Posts: 14
    You're a trooper!

  • Tip this post

    Make Anonymous
  • Top 
       
     Post subject: Re: Round One
     Post Posted: Thu May 03, 2018 7:57 am 
    User avatar
    Print Book 2 & Draw Book 3 Supporter This user was a Tool before it was cool Pin-up Calendar and New Art Team Supporter Here for the 10th Anniversary Has collected at least one unit This user is a Tool! Erfworld Bicycle® Playing Cards supporter Mined 4 Erf Won Mine4erf for the Marbits Was an active Tool on Free Cards Day Won Mine4erf for the Gobwins For when you need it most
    Offline
    Joined: Thu Oct 08, 2009 5:12 pm
    Posts: 367
    Thanks for letting us join you on your journey; it means a lot that you're willing to share this with us

    I'm glad to hear that you're starting to get your appetite back!

    Good Luckamancy with the chemo, and thanks, once again, for including us in all of this.

  • Tip this post

    Make Anonymous
  • Top 
       
     Post subject: Re: Round One
     Post Posted: Thu May 03, 2018 8:44 am 
    This user is a Tool!
    Offline
    Joined: Thu Mar 08, 2018 10:19 am
    Posts: 33
    :D Love the Pokeball description. Although, since you were connected to it, it implies that YOU were the Pokémon. That being the case, what type of Pokémon are you?

    Image
    Riolu
    You can hold your own and know that action is the best way to get things done. That’s why Riolu is the Pokémon for you. Pick Riolu to start your adventure in Pokémon Super Mystery Dungeon.

    _________________
    “If the Truth can be Told, so as to be Understood, it WILL be Believed.” - T. McKenna

  • Tipped by 1 person!
  • Tip this post

    Make Anonymous
  • Top 
       
     Post subject: Re: Round One
     Post Posted: Thu May 03, 2018 7:49 pm 
    User avatar
    Here for the 10th Anniversary Has collected at least one unit Erfworld Bicycle® Playing Cards supporter
    Offline
    Joined: Tue Jun 09, 2009 12:03 am
    Posts: 150
    Ahh, you can take your chemo home with you. Mine was such a doozy that it was strictly inpatient. Of course, as they pointed out, taking it home with you has its own concerns that must be addressed. Fortunately, your medical staff seems on the ball.

    If you start experiencing bouts of nausea, tell your doctors immediately. Trust me on this, it can snowball quickly. It isn't a 'little thing', it is a very important thing. Because excessive vomiting can very quickly lead to esophageal ulcers, which I can say with some personal experience and authority are No Fun.

    And if at ANY time the phrase 'nah, I shouldn't pester my doctor about this' or 'eh, it isn't too bad, I can muscle through this' runs through your head with respect to any side-effects, please immediately stop and discuss it with Rob. If he wants you to tell the doc about it, please do so. Small things can become big things if they are ignored.

    But it sounds like they tuned your cocktail right the first time... take this as a miracle and a good omen for the future. The Titans themselves wish for your recovery to be relatively swift and painless, who are we to disagree?

    In many ways, chemo is a rather indiscriminate weapon, afflicting both your opponent and yourself. Think of it as that idiot mage who keeps dropping fireballs on your head while trying to burn the enemies. Sure, he gets the job done, but it's annoying and aggravating. So if they're at least willing to buff you with Protection from Elements (fire) first, take it and run with it as much as you can.

    They aren't kidding about the photosensitivity either. When I was walking about between treatments, I joked that I looked like Kojak, you know that detective guy? Because between the trenchcoat, the shades, and the hat, and the bald head under the hat, I was nearly there. The suckers were on the suggestion of one of the nurses, and completed the cosplay.

    And yea, that IV stand... I swear the damn things were made by the bidder who promised to make them as kludgy and inconvenient as humanly possible.

    But hey, round one sounds like a victory for Team Linda. Keep up the momentum.

  • Tipped by 4 people!
  • Tip this post

    Make Anonymous
  • Top 
       
     Post subject: Re: Round One
     Post Posted: Fri May 04, 2018 1:38 am 
    This user is a Tool! Was an active Tool on Free Cards Day
    Offline
    Joined: Tue May 09, 2017 10:59 pm
    Posts: 17
    Thank you for sharing. I hope this round goes well for you,and your recovery, both from this round and overall, is swift! The cold sensitivity and sweating and extra work...well, that's butts, and it's ok to call it butts! Kick ass, take names, and do your thing, Linda! We're all here in your corner!

  • Tip this post

    Make Anonymous
  • Top 
       
     Post subject: Re: Round One
     Post Posted: Fri May 04, 2018 11:32 am 
    Offline
    Joined: Thu Jul 02, 2009 2:10 pm
    Posts: 94
    ShneekeyTheLost wrote:
    They aren't kidding about the photosensitivity either. When I was walking about between treatments, I joked that I looked like Kojak, you know that detective guy? Because between the trenchcoat, the shades, and the hat, and the bald head under the hat, I was nearly there. The suckers were on the suggestion of one of the nurses, and completed the cosplay.


    Could be worse. Photofrin II for PDT gives you 40 days worth of severe photosensitivity.

  • Tip this post

    Make Anonymous
  • Top 
       
     Post subject: Re: Round One
     Post Posted: Fri May 04, 2018 11:00 pm 
    Site Admin
    User avatar
    This user was a Tool before it was cool This user is a member of Team Erfworld This user is a Tool! Has collected at least one unit Here for the 10th Anniversary Mined 4 Erf Celebrated Rob and Linda's 1st For when you need it most Clubs Suit Pip
    Offline
    Joined: Fri Jul 29, 2011 11:55 am
    Posts: 34
    ShneekeyTheLost wrote:
    Ahh, you can take your chemo home with you. Mine was such a doozy that it was strictly inpatient. Of course, as they pointed out, taking it home with you has its own concerns that must be addressed. Fortunately, your medical staff seems on the ball.


    I was really skeptical and extremely nervous about it fortunately everything went well, at least on this first round.

    ShneekeyTheLost wrote:
    If you start experiencing bouts of nausea, tell your doctors immediately. Trust me on this, it can snowball quickly. It isn't a 'little thing', it is a very important thing. Because excessive vomiting can very quickly lead to esophageal ulcers, which I can say with some personal experience and authority are No Fun.

    And if at ANY time the phrase 'nah, I shouldn't pester my doctor about this' or 'eh, it isn't too bad, I can muscle through this' runs through your head with respect to any side-effects, please immediately stop and discuss it with Rob. If he wants you to tell the doc about it, please do so. Small things can become big things if they are ignored.


    I've got to admit, you're describing me to a tee. If Rob hadn't insisted we go to the ER in the first place I would have ended up delaying getting the diagnosis even longer. Even while I was talking to the ER doctor I was telling him I'm probably wasting his time. He was so patient with me and said something to the effect of: you're never wasting our time coming to the ER. So yeah. Everyday, Rob is frequently asking me how I'm doing and if I hesitate in the slightest to answer the question he automatically suspects that I'm trying to down play how and/or what I'm feeling. If he thinks there's the slightest need to call the doctor you can bet he will.

    ShneekeyTheLost wrote:
    But it sounds like they tuned your cocktail right the first time... take this as a miracle and a good omen for the future. The Titans themselves wish for your recovery to be relatively swift and painless, who are we to disagree?


    Indeed! I feel extremely fortunate in that regard.

    ShneekeyTheLost wrote:
    In many ways, chemo is a rather indiscriminate weapon, afflicting both your opponent and yourself. Think of it as that idiot mage who keeps dropping fireballs on your head while trying to burn the enemies. Sure, he gets the job done, but it's annoying and aggravating. So if they're at least willing to buff you with Protection from Elements (fire) first, take it and run with it as much as you can.


    So true! I'm really worried that with each round I will become more susceptible to infection and other horrible side effects that I have yet to experience. But my greatest fear is that the chemo won't be able to beat the enemy. I will have to wait a while before that information becomes known.

    ShneekeyTheLost wrote:
    They aren't kidding about the photosensitivity either. When I was walking about between treatments, I joked that I looked like Kojak, you know that detective guy? Because between the trenchcoat, the shades, and the hat, and the bald head under the hat, I was nearly there. The suckers were on the suggestion of one of the nurses, and completed the cosplay.


    Oh now that's cool, actually. And yes, I'm old enough to remember watching Kojak the first time around. XD

    ShneekeyTheLost wrote:
    And yea, that IV stand... I swear the damn things were made by the bidder who promised to make them as kludgy and inconvenient as humanly possible.


    :lol: :lol: :lol:

    ShneekeyTheLost wrote:
    But hey, round one sounds like a victory for Team Linda. Keep up the momentum.


    I sure as heck hope to. Thank you.

    _________________

    Just call me Baldino. It's what you get when you combine Balder with Paolino.

  • Tipped by 4 people!
  • Tip this post

    Make Anonymous
  • Top 
       
     Post subject: Re: Round One
     Post Posted: Tue May 08, 2018 11:24 am 
    User avatar
    This user is a Tool! This user was a Tool before it was cool Pin-up Calendar and New Art Team Supporter Here for the 10th Anniversary Has collected at least one unit This user got funny with a rodent Erfworld Bicycle® Playing Cards supporter Mined 4 Erf For when you need it most Was an active Tool on Free Cards Day Won Mine4erf for the Gobwins
    Offline
    Joined: Wed Jun 10, 2009 3:53 pm
    Posts: 121
    As I'm sure you are aware, Chemo is very much like fireballing your party. They're poisoning you, but the poison should hopefully kill the cancer faster.

    Of course, the advances in Chemo take two forms: Poisons that the cancerous cells uptake faster than the healthy cells, and poisons that healthy cells are less likely to be heavily impacted by due to differences in metabolics.

    BTW if you want to read some interesting stuff (and admittedly not so interesting stuff) about cancer treatments.
    http://blogs.sciencemag.org/pipeline/ar ... ory/cancer

    _________________
    Democracy? Republic? No we live in a Toolecratic Hegemony!

  • Tipped by 1 person!
  • Tip this post

    Make Anonymous
  • Top 
       
     Post subject: Re: Round One
     Post Posted: Thu May 10, 2018 12:25 am 
    User avatar
    Here for the 10th Anniversary Has collected at least one unit Erfworld Bicycle® Playing Cards supporter
    Offline
    Joined: Tue Jun 09, 2009 12:03 am
    Posts: 150
    Linda Balder wrote:
    So true! I'm really worried that with each round I will become more susceptible to infection and other horrible side effects that I have yet to experience.

    Listen to your doctors, they will be able to help navigate you through that boop-hole. The chemo actually started off at a good time of year, you've got *months* before flu season comes back around.

    The big thing is being self-aware of the warning signs of sickness. Because being immunocompromised (and there's a mouth-filling word if I've ever spat one out) means that even a little cough can blow up into pneumonia in no time flat. And THAT means that if you so much as break a fever, get your keister down to the doc's. Even if it's 'just a little cold', do it. Remember... before modern medicine, influenza was one of the world's biggest killers. Take it seriously.
    Quote:
    But my greatest fear is that the chemo won't be able to beat the enemy. I will have to wait a while before that information becomes known.
    Understandable. In fact, I'd probably be worried about being in denial if you weren't worried about that. However, if I may present a cleverly thought out and erudite rebuttal... boot to the head.

    And for that other thought, you know, the one that goes 'is this really worth it?', I shall eloquently dismiss as unworthy of rebuttal with... a boot to the head. And one for that other jerk.

    And to that poisonous, insidious thought that goes 'all I'm going to do is leave him with a pile of bills', I give... not a boot to the head... but a rabid wolverine to be placed within its trousers, because that little boop-face needs to just shut the boop up already. Oh, and a boot to the head all 'round, for good measure.

    And if they come back 'round to pester you again? Don't worry, I got a whole lot more where that came from. Takes almost no juice for me to Summon Boot To The Head, and I can chain it for free, so there's going to be no shortages of boots to heads whenever that sort of negativity starts poking around again.

    Quote:
    I sure as heck hope to. Thank you.
    You are quite welcome.

    In all seriousness, though, the better the spirits you are in, the more easily you can beat this. And laughter, at least in a situation like this, really can be the best medicine.

    And sometimes... humor can be used to shine a light into a dark and ugly corner... only to reveal that what you thought was a scary monster was little more than a wind-up monkey with cymbals and a fez (because fezes are cool). Even if it is still just a bit creepy after all, it's not the soul-paralyzing horror you were afraid it might have been.

  • Tipped by 4 people!
  • Tip this post

    Make Anonymous
  • Top 
       
     Post subject: Re: Round One
     Post Posted: Thu May 10, 2018 10:47 am 
    User avatar
    Pin-up Calendar and New Art Team Supporter This user is a Tool! Has collected at least one unit Won Mine4erf for the Gobwins Was an active Tool on Free Cards Day
    Offline
    Joined: Fri Oct 02, 2015 9:08 am
    Posts: 5
    My grandfather and mother have both gone through chemotherapy. I remember them both saying they got sores in their mouth because of it. Strangely enough eating yogurt helped heal the sores. Just wanted to pass along a potential helpful tidbit.

  • Tipped by 1 person!
  • Tip this post

    Make Anonymous
  • Top 
       
     Post subject: Re: Round One
     Post Posted: Thu May 10, 2018 6:32 pm 
    User avatar
    Pin-up Calendar and New Art Team Supporter This user posted the comment of the month Here for the 10th Anniversary Has collected at least one unit This user got funny with a rodent This user is a Tool! Was an active Tool on Free Cards Day Celebrated Rob and Linda's 1st
    Offline
    Joined: Fri May 01, 2009 2:52 am
    Posts: 373
    I'm pretty impressed by the lack of medical advice from people on these threads other than those who've actually had cancer or had a close loved one have it. Good going everybody! And go Team Linda! The counter-attack has officially been launched!

    _________________
    There's no need to cry, broken doll. Push me into your hand, and I will mend you.

  • Tipped by 1 person!
  • Tip this post

    Make Anonymous
  • Top 
       
     Post subject: Re: Round One
     Post Posted: Sat May 12, 2018 12:13 am 
    User avatar
    Offline
    Joined: Fri Feb 26, 2016 2:37 am
    Posts: 6
    I don't post much, but my prayers are with you. I'm glad you're able to stay positive, that's important. Having loved ones there to support you is also a huge boon. Last year I went from being told my leg might be amputated and being bedridden and unable to put any weight on it as the fracture was so severe. I do not think I'd be walking now if I didn't have someone to love and have their love in return. It makes a huge difference in mindset. With that, I had the drive to go from wheelchair to walker to crutch to cane and as of six weeks ago I am walking without any aid.

  • Tipped by 3 people!
  • Tip this post

    Make Anonymous
  • Top 
       
     Post subject: Re: Round One
     Post Posted: Sat May 12, 2018 12:20 am 
    Offline
    Joined: Sat May 12, 2018 12:18 am
    Posts: 1
    I've NEVER posted to the Erfworld Forums. At all. Love the comic, just never really had an inclination to post anything.

    But I wanted to post for this because I wanted to wish you, Linda, and Rob both my best wishes and hope that you will be okay.

  • Tipped by 2 people!
  • Tip this post

    Make Anonymous
  • Top 
       
     Post subject: Re: Round One
     Post Posted: Sat May 12, 2018 9:47 am 
    User avatar
    Offline
    Joined: Sat May 12, 2018 9:19 am
    Posts: 4
    I know it's overwhelming but it does sound like you're tolerating the chemo very well. I think we went through the same regimen. I still use the Eloxatin blanket they gave us the first course. But the pump has changed quite a bit.

    Please do be careful of infections but know that the thing you have to watch most closely is the chemo infusions. The nurses mean well but they get in a hurry sometimes. Have Rob watch that they are consistently sterilizing before using the port and are not skipping any steps. And on chemo day have him checking your temperature every hour after treatment. My Laura got an infection from her port durring her first course. Her temp spiked the evening we got home. Being careful about checking was critical.

    And check with your doctor's office about financial support. Many of them have funds to help patients or know organizations that do. I doesn't hurt to ask and there's no reason not to find all the help you can.

    Hang in there. Focus on now. You really are doing well.

  • Tipped by 2 people!
  • Tip this post

    Make Anonymous
  • Top 
       
     Post subject: Re: Round One
     Post Posted: Sun May 13, 2018 10:27 am 
    Offline
    Joined: Sun May 13, 2018 10:23 am
    Posts: 1
    Hi, Have you all considered a Ketogenic diet? It is a high fat medium protein, low carb diet. It has been shown to help reduce cancer cells. Please look into it.

  • Tip this post

    Make Anonymous
  • Top 
       
     Post subject: Re: Round One
     Post Posted: Sun May 13, 2018 1:06 pm 
    Here for the 10th Anniversary
    Offline
    Joined: Sat Jan 30, 2016 9:11 pm
    Posts: 29
    Praying for you, Linda. Thanks so much for being open with those of us who love your work here at ErfForums. I know we may not be able to do anything but pray and care .. but we’re doing that.

  • Tipped by 1 person!
  • Tip this post

    Make Anonymous
  • Top 
       
     Post subject: Re: Round One
     Post Posted: Sun May 13, 2018 7:57 pm 
    User avatar
    Here for the 10th Anniversary Has collected at least one unit Erfworld Bicycle® Playing Cards supporter
    Offline
    Joined: Tue Jun 09, 2009 12:03 am
    Posts: 150
    Enderof616 wrote:
    Hi, Have you all considered a Ketogenic diet? It is a high fat medium protein, low carb diet. It has been shown to help reduce cancer cells. Please look into it.

    It actually doesn't. Fun fact, anything not coming out of an actual Doctor's mouth, one with a medical degree and specialties in the relevant fields, that claims to 'help reduce cancer cells'? Almost inevitably are just a scam to prey on the scared.

    I'm sure she has a nutritionist helping her out. One with an actual degree. Nutrition is extremely important in these things, the moreso as she's burning more calories which need to be replaced.

    You're concerned, I appreciate that, we all do. And when you are concerned, you want to do everything you can to help someone in need. Which is entirely to your credit. And I apologize for jumping in like this, because I know that all you are trying to do is help. But you've kind of hit on a nerve here, because of my personal experiences when I was in cancer treatment, and I want to try to address in as polite and civil a manner as possible. Not just for your sake, but for everyone's.

    The internet is absolutely full of remedies that are 'proven to help cancer victims', and 'helps reduce cancer cells', generally with some vague 'or your money back' tagline. Many of them, at first glance, can appear legitimate. Unfortunately, very very few of them actually are.

    Before you give out advise like this, I urge you to stop and think for a moment: If this is legitimate, then it would have been published in medical journals for peer review and confirmation, and her nutritionist would have already heard about it, and suggested it. If, however, it isn't legitimate, then all that advise like this is going to cause is confusion in a time where everyone needs clarity.

    I'm really not trying to be rude, and I apologize if it seems like I'm jumping down your throat and overreacting a bit. But please, find another way to show your concern.

  • Tipped by 4 people!
  • Tip this post

    Make Anonymous
  • Top 
       
     Post subject: Re: Round One
     Post Posted: Mon May 14, 2018 3:39 am 
    Pin-up Calendar and New Art Team Supporter Here for the 10th Anniversary Has collected at least one unit This user is a Tool! Mined 4 Erf Won Mine4erf for the Gobwins This user got funny with a rodent Was an active Tool on Free Cards Day
    Offline
    Joined: Tue Aug 26, 2014 10:22 pm
    Posts: 993
    ShneekeyTheLost wrote:
    Enderof616 wrote:
    Hi, Have you all considered a Ketogenic diet? It is a high fat medium protein, low carb diet. It has been shown to help reduce cancer cells. Please look into it.

    It actually doesn't. Fun fact, anything not coming out of an actual Doctor's mouth, one with a medical degree and specialties in the relevant fields, that claims to 'help reduce cancer cells'? Almost inevitably are just a scam to prey on the scared.

    I'm sure she has a nutritionist helping her out. One with an actual degree. Nutrition is extremely important in these things, the moreso as she's burning more calories which need to be replaced.

    You're concerned, I appreciate that, we all do. And when you are concerned, you want to do everything you can to help someone in need. Which is entirely to your credit. And I apologize for jumping in like this, because I know that all you are trying to do is help. But you've kind of hit on a nerve here, because of my personal experiences when I was in cancer treatment, and I want to try to address in as polite and civil a manner as possible. Not just for your sake, but for everyone's.

    The internet is absolutely full of remedies that are 'proven to help cancer victims', and 'helps reduce cancer cells', generally with some vague 'or your money back' tagline. Many of them, at first glance, can appear legitimate. Unfortunately, very very few of them actually are.

    Before you give out advise like this, I urge you to stop and think for a moment: If this is legitimate, then it would have been published in medical journals for peer review and confirmation, and her nutritionist would have already heard about it, and suggested it. If, however, it isn't legitimate, then all that advise like this is going to cause is confusion in a time where everyone needs clarity.

    I'm really not trying to be rude, and I apologize if it seems like I'm jumping down your throat and overreacting a bit. But please, find another way to show your concern.


    Whilst this is a good point, (especially given the amount of specialists that have reached out to rob and linda from the community), i suspect there's more than a fair few people, (there where plenty of stories in the early journal threads), who's had doctors misdiagnose or give bad advice that they're inclined to make sure just in case.

    In truth it's usually a combination of no doctor being able to stay current on everything coupled with simple human nature dictating that no matter how dedicated the person they will make mistakes. And i think most people know this, but it dosen;t change that gut level emotional reaction people have that makes them want to double check to be sure. I can speak to that from personal experiance, (First cousin had appendicitis misdiagnosed as ovary cysts and came within hours of dying as a result), as i'm sure can most of my family, (the doctors missed a burst placenta when mum was pregnant with me nearly killing us both).

    And in this case because many of us have talked with Linda at one time or another, (thank you for resolving the matter btw), it's more personal to us so our emotional reflex is harder to ignore than usual.


    And no for my own advice.

    Whatever happens, you get any weird aches or pains, mention it immediately, it could be a sign of the cancer spreading, and this goes 20 times more if you get the slightest mental fogginess or a headache, mention it. It may just be a normal headache or tiredness or whatever but it may not. I lost one of my grandmothers to cancer a few years ago and it got her by spreading to the brain and she didn;t report the symptoms until just a couple of weeks after they first started but that was enough that it had taken root too strongly to kill.

    I know there's no guarantees in this fight but i really don't want Rob to have to go through that if it's at all preventable. Not only does how much he loves you come through very clearly in his blog posts, (i particularly like his description of your heart as his favorite heart), but i went to see my grn that last night and whilst i'm profoundly glad i did, it's one of my handful of worst memories and i wouldn't wish it on anyone, not even my worst enemy.

    Now pardon me while i go have a calm down because typing thats dragged up some very rough memories.

  • Tipped by 2 people!
  • Tip this post

    Make Anonymous
  • Top 
       
     Post subject: Re: Round One
     Post Posted: Mon May 14, 2018 10:12 am 
    User avatar
    This user is a Tool! This user was a Tool before it was cool Pin-up Calendar and New Art Team Supporter Here for the 10th Anniversary Has collected at least one unit This user got funny with a rodent Erfworld Bicycle® Playing Cards supporter Mined 4 Erf For when you need it most Was an active Tool on Free Cards Day Won Mine4erf for the Gobwins
    Offline
    Joined: Wed Jun 10, 2009 3:53 pm
    Posts: 121
    Carl wrote:
    In truth it's usually a combination of no doctor being able to stay current on everything coupled with simple human nature dictating that no matter how dedicated the person they will make mistakes.

    Completely irrelevant but an example of such, from 2004 to 2006 I had horrible ulcers. As in three times I was vomiting 'coffee grounds' (that's blood, btw).
    Now I had read about Dr. Barry Marshall's work on most ulcers actually being caused by bacteria prior to that. Like 2000? I think in my Mensa Journal, not sure. Anywhoo, I read about him winning the nobel prize for medicine in 2005. I mentioned it to my doctor. I brought the summary article, and the summary of the nobel prize award.
    More acid reducers.
    It wasn't until December 2006 when I got an unrelated infection and got put on a one two three gut punch of antibiotics that my ulcer even got more than a little mitigated. (Seriously, one was one of those 'take 10, then 9... etc, with pills about the size of Tylenol caplets. )
    It went away. Like magic.

    _________________
    Democracy? Republic? No we live in a Toolecratic Hegemony!

  • Tipped by 1 person!
  • Tip this post

    Make Anonymous
  • Top 
       
    Display posts from previous:  Sort by  
     
    Post new topic  Reply to topic  [ 26 posts ] 

    Board index » Erfworld Things » LiveRjournal


    Who is online

    Users browsing this forum: No registered users and 1 guest

     
     

     
    You cannot post new topics in this forum
    You cannot reply to topics in this forum
    You cannot edit your posts in this forum
    You cannot delete your posts in this forum
    You cannot post attachments in this forum

    Search for:
    Jump to: