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 Post subject: Re: Round One
 Post Posted: Mon May 14, 2018 2:24 pm 
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Carl wrote:
Whilst this is a good point, (especially given the amount of specialists that have reached out to rob and linda from the community), i suspect there's more than a fair few people, (there where plenty of stories in the early journal threads), who's had doctors misdiagnose or give bad advice that they're inclined to make sure just in case.

In truth it's usually a combination of no doctor being able to stay current on everything coupled with simple human nature dictating that no matter how dedicated the person they will make mistakes. And i think most people know this, but it dosen;t change that gut level emotional reaction people have that makes them want to double check to be sure. I can speak to that from personal experiance, (First cousin had appendicitis misdiagnosed as ovary cysts and came within hours of dying as a result), as i'm sure can most of my family, (the doctors missed a burst placenta when mum was pregnant with me nearly killing us both).

And in this case because many of us have talked with Linda at one time or another, (thank you for resolving the matter btw), it's more personal to us so our emotional reflex is harder to ignore than usual.
While granted, it's very difficult to keep on top of the latest research in your field while simultaneously keeping a full load of patients treated properly, if there WAS some sort of panacea that was as simple as a 'fad diet' that was actually proven to 'help reduce cancer cells', do you honestly think there wouldn't be a single individual in the *world* that would remain ignorant of it? And the inventor of said universal cancer cure would be able to pretty much write his own check, and practically overnight be one of the world's newest billionaires.

Of course, that isn't the case, because things aren't so simple. 'Cancer' isn't a single disease, it is an entire category of thousands of diseases involving the unregulated growth of tumors, and no one thing, especially no one fad diet, is going to be able to affect them *all*.

That's really what flicked me on the raw, was the bland and blanket 'this will reduce cancer cells' statement. No qualifiers, no conditionals, just a blanket statement. Which is the first indicator that it is complete BS. It combines the worst of the late-night infomercial BS with exploitation of the already scared to attempt to provide false medical advise more likely to *KILL* the patient than actually help... all for a quick buck.

And worse still is that people like this person who was honestly trying to help because he heard this thing would work are getting taken in by it, and spreading the word, like some kind of anti-vaxer movement, with the fraudulent leading the gullible leading the ignorant. This is not intended as an insult to the unfortunate who made the suggestion here on the forums, he's as much a victim of this as anyone else is, because he got taken in.

I'm not trying to say that medical doctors are infallible, and I agree that misdiagnoses is a thing that happens, even with professionals. But if you suspect you've been given an incorrect diagnosis, the correct solution is to go to a different doctor for a second opinion, not try some fad diet you heard about on the internet.

I apologize if I sound confrontational. I'm trying quite hard to not be confrontational on the issue, but I also know that there's quite a bit of personal issues tied up on this topic, so I might not be succeeding as well as I think/hope I am. I am not intending to attack your extremely valid caveat or the one who made the original suggestion, but the fraudulent psudoscience pushers who are trying to make a quick buck off of people who are scared for their loved ones.

I mean, it's not even Carnymancy, because Carnymancy might actually be able to *deliver* what they promise... cheating the system to effect a cure, even if the undisclosed side effects would make you regret taking it. It's just plain, outright false advertising. It's even worse than Charlescomm, who at least uphold the letter of their contract, if not the spirit. It's like some random stabber pretending to be a Carnymancer and selling quack cures when he knows that they are little more than piss and ink.

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     Post subject: Re: Round One
     Post Posted: Mon May 14, 2018 6:01 pm 
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    Thank you for sharing, Linda.

    I went through breast cancer treatment (2015/2016) and was pretty much told "If the chemo doesn't kill you, you'll be cured!" I was even allergic to one of the drugs and had to be knocked out with Benadryl for them to administer it. It wasn't fun, but as it turned out, being bald was great for my swimming career. My doctor proscribed some pretty potent steroids to keep my appetite up and the nausea suppressed (and if that hadn't worked, she would've offered me Marijuana.) Neuropathy (tingling fingers and toes) was pretty normal for me and only made worse by things like alcohol and caffeinated drinks (boo!). Mouth sores, hot flashes, low energy, dryness/irritation, constipation (I've got a great cocktail called a "brown cow" I could share, if needed), terrible sleep, and occasional white cell count crashes & ER visits were also something to work through.

    Have they told you what to expect for future side effects? Are you making plans accordingly? For example, I was told roughly which week I would lose my hair and took pictures for my Christmas cards BEFORE that happened. The hospital library also had a book called "Eating Well Through Cancer" that had a bunch of good recipes to assist with the various ailments (the nausea and mouth ulcer section was particularly useful) - just be warned it has a lot of sugary or heavy carb comfort food recipes that are NOT recommended for living a future long and cancer free life. https://www.amazon.com/Eating-Well-Thro ... ing+cancer

    I hope round two goes as smoothly as round 1.

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     Post subject: Re: Round One
     Post Posted: Tue May 15, 2018 4:06 pm 
    Pin-up Calendar and New Art Team Supporter Here for the 10th Anniversary Has collected at least one unit This user is a Tool! Mined 4 Erf Won Mine4erf for the Gobwins This user got funny with a rodent Was an active Tool on Free Cards Day
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    ShneekeyTheLost wrote:
    Carl wrote:
    Whilst this is a good point, (especially given the amount of specialists that have reached out to rob and linda from the community), i suspect there's more than a fair few people, (there where plenty of stories in the early journal threads), who's had doctors misdiagnose or give bad advice that they're inclined to make sure just in case.

    In truth it's usually a combination of no doctor being able to stay current on everything coupled with simple human nature dictating that no matter how dedicated the person they will make mistakes. And i think most people know this, but it dosen;t change that gut level emotional reaction people have that makes them want to double check to be sure. I can speak to that from personal experiance, (First cousin had appendicitis misdiagnosed as ovary cysts and came within hours of dying as a result), as i'm sure can most of my family, (the doctors missed a burst placenta when mum was pregnant with me nearly killing us both).

    And in this case because many of us have talked with Linda at one time or another, (thank you for resolving the matter btw), it's more personal to us so our emotional reflex is harder to ignore than usual.
    While granted, it's very difficult to keep on top of the latest research in your field while simultaneously keeping a full load of patients treated properly, if there WAS some sort of panacea that was as simple as a 'fad diet' that was actually proven to 'help reduce cancer cells', do you honestly think there wouldn't be a single individual in the *world* that would remain ignorant of it? And the inventor of said universal cancer cure would be able to pretty much write his own check, and practically overnight be one of the world's newest billionaires.

    Of course, that isn't the case, because things aren't so simple. 'Cancer' isn't a single disease, it is an entire category of thousands of diseases involving the unregulated growth of tumors, and no one thing, especially no one fad diet, is going to be able to affect them *all*.

    That's really what flicked me on the raw, was the bland and blanket 'this will reduce cancer cells' statement. No qualifiers, no conditionals, just a blanket statement. Which is the first indicator that it is complete BS. It combines the worst of the late-night infomercial BS with exploitation of the already scared to attempt to provide false medical advise more likely to *KILL* the patient than actually help... all for a quick buck.

    And worse still is that people like this person who was honestly trying to help because he heard this thing would work are getting taken in by it, and spreading the word, like some kind of anti-vaxer movement, with the fraudulent leading the gullible leading the ignorant. This is not intended as an insult to the unfortunate who made the suggestion here on the forums, he's as much a victim of this as anyone else is, because he got taken in.

    I'm not trying to say that medical doctors are infallible, and I agree that misdiagnoses is a thing that happens, even with professionals. But if you suspect you've been given an incorrect diagnosis, the correct solution is to go to a different doctor for a second opinion, not try some fad diet you heard about on the internet.

    I apologize if I sound confrontational. I'm trying quite hard to not be confrontational on the issue, but I also know that there's quite a bit of personal issues tied up on this topic, so I might not be succeeding as well as I think/hope I am. I am not intending to attack your extremely valid caveat or the one who made the original suggestion, but the fraudulent psudoscience pushers who are trying to make a quick buck off of people who are scared for their loved ones.

    I mean, it's not even Carnymancy, because Carnymancy might actually be able to *deliver* what they promise... cheating the system to effect a cure, even if the undisclosed side effects would make you regret taking it. It's just plain, outright false advertising. It's even worse than Charlescomm, who at least uphold the letter of their contract, if not the spirit. It's like some random stabber pretending to be a Carnymancer and selling quack cures when he knows that they are little more than piss and ink.



    To be fair i didn't read it as "this will cure your cancer" but more as "This will help a little the same way drinking lots of fluid when you have a cold will". And i was a little suspicious when i first saw it before your post. I was just pointing out why people will somtimes try to help like this vis a vis your point regarding medical professionals knowing stuff.

    I can totally understand why you got triggered if you read it your way though.

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     Post subject: Re: Round One
     Post Posted: Wed May 16, 2018 10:38 am 
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    As many of you may know... I absolutely love ErfWorld and everything about it... I can't make the hours on Tuesdays and Fridays pass fast enough to see the updates post.

    And yet, despite all that, I would rather see/read an update to this story more than anything in the world. For a variety of reasons...

    First and most importantly is because we all love Linda and Rob and want to know the main characters in this most important story are doing well.

    Secondly... like many of you, I'm not always big on sharing personal stuffs, but... my girlfriend is currently awaiting surgery on May 30th to remove a 5.5 inch round mass from her lower right side that they haven't/can't confirm is malignant until they've got it out. All of her blood tests have come back positive (as in, the good numbers - not positive in the medical sense that it is what was tested for), so we're hopeful that we won't have a protracted recovery/chemo to deal with.

    And lastly, and perhaps most absurdly, is because despite her protestations to the contrary, Linda is at least as fabulous of a writer as her more acclaimed and famous husband is! I am an acutely visual reader - that is, when someone writes something, my mind automagically creates the scene in my head - and it takes a talented writer to provide the level of detail required to make this happen.

    I've had more than my fair share of time in hospitals in my lifetime, and Linda's writing touches and recalls and vividly un-croaks those memories and brings them to startling life in my mind... in a way a lesser Word-o-mancer (yes, I made up my own class of magic, deal with it!) could never do.

    If any of you watched the Starz Network series "Spartacus" a few years back, you may remember the lead in that series, Andy Whitfield, died between the first and second seasons from non-Hodgkin lymphoma. What you may not be aware is the actress who played his ill-fated wife, Erin Cummings, is also fighting breast cancer and has been likewise journaling her progress on CaringBridge.

    Erin is also a very talented writer... although quite a bit, eh... earthier, in her commentary... than Linda is :lol:

    The parallels in their journeys are interesting but the one that struck me most was, "I just married the love of my life and whoops, cancer!" - I say this because, my girlfriend and I were together barely a week and a half when we discovered her tumor... so the moral is, of course, ladies... stop looking for the right guy, he causes cancer! :lol:

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     Post subject: Re: Round One
     Post Posted: Wed May 16, 2018 10:59 am 
    Pin-up Calendar and New Art Team Supporter Here for the 10th Anniversary Has collected at least one unit This user is a Tool! Mined 4 Erf Won Mine4erf for the Gobwins This user got funny with a rodent Was an active Tool on Free Cards Day
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    Darkstar7613 wrote:
    As many of you may know... I absolutely love ErfWorld and everything about it... I can't make the hours on Tuesdays and Fridays pass fast enough to see the updates post.

    And yet, despite all that, I would rather see/read an update to this story more than anything in the world. For a variety of reasons...

    First and most importantly is because we all love Linda and Rob and want to know the main characters in this most important story are doing well.

    Secondly... like many of you, I'm not always big on sharing personal stuffs, but... my girlfriend is currently awaiting surgery on May 30th to remove a 5.5 inch round mass from her lower right side that they haven't/can't confirm is malignant until they've got it out. All of her blood tests have come back positive (as in, the good numbers - not positive in the medical sense that it is what was tested for), so we're hopeful that we won't have a protracted recovery/chemo to deal with.

    And lastly, and perhaps most absurdly, is because despite her protestations to the contrary, Linda is at least as fabulous of a writer as her more acclaimed and famous husband is! I am an acutely visual reader - that is, when someone writes something, my mind automagically creates the scene in my head - and it takes a talented writer to provide the level of detail required to make this happen.

    I've had more than my fair share of time in hospitals in my lifetime, and Linda's writing touches and recalls and vividly un-croaks those memories and brings them to startling life in my mind... in a way a lesser Word-o-mancer (yes, I made up my own class of magic, deal with it!) could never do.

    If any of you watched the Starz Network series "Spartacus" a few years back, you may remember the lead in that series, Andy Whitfield, died between the first and second seasons from non-Hodgkin lymphoma. What you may not be aware is the actress who played his ill-fated wife, Erin Cummings, is also fighting breast cancer and has been likewise journaling her progress on CaringBridge.

    Erin is also a very talented writer... although quite a bit, eh... earthier, in her commentary... than Linda is :lol:

    The parallels in their journeys are interesting but the one that struck me most was, "I just married the love of my life and whoops, cancer!" - I say this because, my girlfriend and I were together barely a week and a half when we discovered her tumor... so the moral is, of course, ladies... stop looking for the right guy, he causes cancer! :lol:


    I've got to agree about the writing part, then again i'm sure based on comments rob has made in the past that linda contributes in her own way as well. But much as i would have vastly preferred that this never happened i'm genuinely enjoying reading these entries.

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     Post subject: Re: Round One
     Post Posted: Fri May 18, 2018 9:55 pm 
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    Darkstar7613 wrote:
    ...Secondly... like many of you, I'm not always big on sharing personal stuffs, but... my girlfriend is currently awaiting surgery on May 30th to remove a 5.5 inch round mass from her lower right side that they haven't/can't confirm is malignant until they've got it out. All of her blood tests have come back positive (as in, the good numbers - not positive in the medical sense that it is what was tested for), so we're hopeful that we won't have a protracted recovery/chemo to deal with.


    I'm so sorry. Waiting that long to know for sure must be excruciating. :( We'll be thinking of the both of you, too.

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    Thank you to Yshl's daughter for my new avatar. I love it! 3/4/2018

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