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 Post Posted: Mon Apr 09, 2018 4:49 pm 
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Here for the 10th Anniversary Has collected at least one unit This user is a Tool! Erfworld Bicycle® Playing Cards supporter Mined 4 Erf Shiny Red Star IRC Quote of the Moment This user got funny with a rodent This user has been published! Won Mine4erf for the Marbits Was an active Tool on Free Cards Day Won Mine4erf for the Gobwins
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Linda Balder wrote:
Yshl wrote:
Linda Balder wrote:
... and my son Thor ....


You've inspired my latest Wait Wait Wait (Parson Learns Something) fan comic. :)

WARNING @LINDA: You may laugh.


You’ve been spending way too much time in the channel with Rob. His goofy sense of humor has rubbed off onto you. That truly made me laugh. Thanks Yshl.

And thank you all for being here for me. You don’t have to make me laugh. Just knowing you’re there and that you truly care is enough. <3


Oh, I came this way. Though I'd love to blame Rob.

...yes, nevermind. Yes.

It's his fault.

And, honor's ours, ma'am. We're all pulling for you. <3

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     Post Posted: Mon Apr 09, 2018 5:30 pm 
    This user is a Tool! This user was a Tool before it was cool Year of the Dwagon Supporter Here for the 10th Anniversary Has collected at least one unit Won Mine4erf for the Gobwins
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    We haven't spoken very many times, but even in our limited interactions, it was obvious how great of a person you are. This couldn't have happened to a less deserving person. Just know that we all love you, and we're all pulling for you. Please, PLEASE, don't push yourself. Rest, and do whatever you can to get better. The world can't afford to lose you.

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     Post Posted: Mon Apr 09, 2018 7:39 pm 
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    Linda: I'm sorry to hear about the difficulties you're going through. I'm cheering for you to roll a natural 20 on your save.

    I work in the mental health field as a peer mentor -- in short, someone who's been through the system as a patient before.

    There are two reasons I mention this:

    1) there are people who have gone through this specific type of thing before, and they can probably help you with tips and tricks, avoiding common pitfalls etc; and
    2) there is a mental health aspect to any trauma (defined as any type of loss). There are peer supporters in your area, I bet, who can help you through the psychological & emotional implications of what's going on in your life right now.

    However you want to proceed, I want you to know that it's YOUR call. This is YOUR life, YOUR recovery, and you get to call the shots. Dr's etc....they're just highly paid consultants. You're the CEO.

    I am sad that you are going through such a scary time right now.

    Andjay

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     Post Posted: Tue Apr 10, 2018 2:36 am 
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    On top of general well-wishes, is it acceptable to make semi-ridiculous hopeful suggestions? https://med.stanford.edu/news/all-news/ ... -mice.html
    This plan isn't even open for clinical trials on humans yet, but seeing as it's just a single injection of a few micrograms of two reasonably cheap (by medical standards) ingredients, both separately approved for use on humans, seems like some sort of bootleg version could be attempted.

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     Post Posted: Tue Apr 10, 2018 12:55 pm 
    Has collected at least one unit Here for the 10th Anniversary This user is a Tool!
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    I've read this comic since the days of OotS. I own as much of the stuff as I've been able to buy over the years which is less than I've wanted. I never signed up for the Toolbox till now.

    I've lost my mother, one grandparent, an uncle, and a great uncle all to different forms of cancer. I have two friends in fights with cancer that going on a decade each now. I have another friend currently recovering from a surgery for a super rare cancer that necessitated the removal of 5 different organs. Fuck cancer. Linda, channel Parson and stomp this shit into the ground. You're awesome, you got this.

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     Post Posted: Wed Apr 11, 2018 4:16 am 
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    Andjay wrote:
    1) there are people who have gone through this specific type of thing before, and they can probably help you with tips and tricks, avoiding common pitfalls etc; and
    2) there is a mental health aspect to any trauma (defined as any type of loss). There are peer supporters in your area, I bet, who can help you through the psychological & emotional implications of what's going on in your life right now.

    Well, I am not so good at psychology and words, but I agree much with that.

    Andjay wrote:
    However you want to proceed, I want you to know that it's YOUR call. This is YOUR life, YOUR recovery, and you get to call the shots. Dr's etc....they're just highly paid consultants. You're the CEO.

    Yet, physicians are specialists of their field. I would mitigate this answer by saying that you have to listen from your medical team, but also as much to you / your body and look for information if you have time. Here, we can help, some of us are probably physicians, oncologists or researchers (I am, as already said, except not a medical doctor [a PhD] and not on liver but on blood-derived cancers).
    When you're the subject, it's not always easy to take a decision, particularly because 1) biology is complicated, 2) cancer biology is exquisitely more complex than standard biology, 3) every patient answers differently to treatment, 4) there are many not-understood "Fate" and 'mancies effects in recovery... If we can help with knowledge...

    strange7person wrote:
    On top of general well-wishes, is it acceptable to make semi-ridiculous hopeful suggestions? https://med.stanford.edu/news/all-news/ ... -mice.html
    This plan isn't even open for clinical trials on humans yet, but seeing as it's just a single injection of a few micrograms of two reasonably cheap (by medical standards) ingredients, both separately approved for use on humans, seems like some sort of bootleg version could be attempted.

    Well at that point, I would trust the medical team to propose some treatment, what I had in mind what rather to fetch information for Linda if needed. I don't know how it's in the US, but in France, medical doctors have a tendency to not fully explain things to patients and their family, to give partial information, particularly about advanced treatments or clinical trials...
    Well, it won't be boring to read you anyway, and if it is, it would be a good sign that nothing terrible happens, I hope!

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     Post Posted: Wed Apr 11, 2018 5:16 am 
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    From viewtopic.php?f=35&t=14392#p239870:
    Linda Balder wrote:
    Off topic note ——> I want to thank those of you who have been reading and/or commenting on my journal posts. Every single one of you have been incredibly supportive, informative, and sometimes even funny. :P I’ve been reading all of your comments but I don’t have the energy to chime in on the conversations. I just want to let all of you know that I really appreciate your taking the time to let me know you’re still there. I know these types of journals can become a burden to read but all I can say is thank you. <—— End of off topic note.

    Again, I think no one here expects you to answer our permanent stream of messages, they are just here to show you that we really care... We don't even expect (I don't at least, never very wise to speak in the name of [so many] others...) to READ all our messages!
    And what this with "you're still here"? Of course we are, even more numerous than before, what did you expect!?
    And then, I guess reading your journal might be a burden, but then it's up to anyone to know one's own limits. Your first post in the above-mentioned topic kind of set a reasonable low threshold :roll: to what to expect later :wanda:, it's some kind of quite "raw" material if I could say so... I couldn't answer there because I couldn't see what to write, but I find it very courageous from your part to share such intimate life experiences, really all my best healomancy and fate saving roll wishes again!

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     Post Posted: Wed Apr 11, 2018 9:52 pm 
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    E is for Erfworld Supporter Year of the Dwagon Supporter Print Book 2 & Draw Book 3 Supporter This user is a Tool! Pin-up Calendar and New Art Team Supporter Mined 4 Erf Has collected at least one unit Won Mine4erf for the Gobwins Won Mine4erf for the Marbits For when you need it most Was an active Tool on Free Cards Day
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    Linda - As others have already said - we appreciate the time you're taking to write this and share, and we're all pulling for you, but please make sure that this journal is only as much of a priority as you want it to be.

    Best thoughts and hopes are with you (and Rob, and your children, and everyone else we haven't met that cares for you) always, and I'll be following although rarely commenting unless I really feel I can add something to the discussion.

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     Post Posted: Fri Apr 13, 2018 8:39 am 
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    Long time reader and lurker here... and I think it is wonderful that you feel up to sharing this with us and get support from this community. I know that that can be a wonderful thing... but never feel obligated or burdened by posting. Please, only post if you feel it is helping you. (I have known a few people who, eventually, felt pressured by the pull to post and posted thing they did not actually want to share to fulfill some kind of obligation they felt to their readers. That bred resentment.)

    That being said, you are not boring :) I wish you the best.

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     Post Posted: Fri Apr 13, 2018 9:11 am 
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    Zebio wrote:
    Andjay wrote:
    Yet, physicians are specialists of their field. I would mitigate this answer by saying that you have to listen from your medical team, but also as much to you / your body and look for information if you have time. Here, we can help, some of us are probably physicians, oncologists or researchers (I am, as already said, except not a medical doctor [a PhD] and not on liver but on blood-derived cancers).
    When you're the subject, it's not always easy to take a decision, particularly because 1) biology is complicated, 2) cancer biology is exquisitely more complex than standard biology, 3) every patient answers differently to treatment, 4) there are many not-understood "Fate" and 'mancies effects in recovery... If we can help with knowledge...


    Oh yes, my apologies, perhaps I came across as too oppositional in my post. Yes, doubly yes, your doctors should be listened to!!! These people are the experts in this subject matter. It would be foolish to bring "highly paid consultants" in to give their input...and then ignore their input. You'd just be wasting a lot of money at that point.

    I merely meant to highlight that they're not the only experts in the room--Linda is the expert on her body, and on how she wants to proceed; she has the final say. But hopefully those decisions are as informed to the best degree possible with the best advice possible.

    Listen to your doctors! :)

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     Post Posted: Mon Apr 16, 2018 4:41 am 
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    Andjay wrote:
    Zebio wrote:
    Andjay wrote:


    Oh yes, my apologies, perhaps I came across as too oppositional in my post. Yes, doubly yes, your doctors should be listened to!!! These people are the experts in this subject matter. It would be foolish to bring "highly paid consultants" in to give their input...and then ignore their input. You'd just be wasting a lot of money at that point.

    I merely meant to highlight that they're not the only experts in the room--Linda is the expert on her body, and on how she wants to proceed; she has the final say. But hopefully those decisions are as informed to the best degree possible with the best advice possible.

    Listen to your doctors! :)

    Well, no apologies needed, we are both saying the very same thing :D , listen very carefully to both your doctors and your body or the other way round...

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     Post Posted: Sat Apr 21, 2018 5:48 pm 
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    I just want to take this opportunity to say thank you for the joy that you and the rest of team erf have brought into my life. whatever happens, know that you have helped to spread an immeasurable amount of joy into the world.

    i've been following the story for years. i'm deeply, emotionally invested in the story.

    with that being said, i would much rather see erfworld disappear, or go on an indefinite hiatus, than to have you stressed, or unhappy over deadlines.

    i'm familiar with the struggle. a few years ago i was a "caregiver" for my aunt with leukemia. i stayed with her in a "cancer hotel" in cleveland, run by the ACS. in that time i met probably 20 or so cancer patients. not a single one of them deserved what was happening. every one of them deserved all of the love and support they could get.

    I was there for my aunt's chemo and bone marrow transplant. the mixture of worry and hope and uncertainty, even without what the chemo is doing to you is exhausting.

    i know that its not my place, but if i may make a suggestion, i think you should take a vacation, or some kind of road trip before the chemo starts. that's partly to help with morale, but there are other benefits as well. for one, it gives you something to make small talk with the nurses. it might seem like a small thing, but being friendly with the nurses helps a lot. hospital rooms can get lonely. even with company, hospitals are a boring place. you end up running out off things to talk about with your longer visitors and sitting there in worried silence.

    another small suggestion is to keep a jar of candy, or cookies, or some other tasty snack food in your room. going through chemo, you wont want to eat any of it. that's normal and expected. the snacks are for the nurses. nurses are often overworked. some people tend to feel bad asking the nurses for stuff, because they are so busy. they don't always have time to eat at work. with light snacks in your room, the nurses will stop in to visit more often, giving you less time alone, with more opportunities to make requests or give feedback. it will also expose you to a wider array of nurses. a nurse that's not assigned to you, might stop in to talk for a minute, and grab a snack. it gives them a chance to grab a snack on the go, and generally improves their disposition.

    these people will see you at your worst, your weakest, most scared. having a good relationship with them can ease the stress quite a bit.

    That's all the good advice i've got. erfworld is much less of a priority than the fight in front of you. we fans can do without. even if updates get reduced to only art pages, or no updates at all.

    again, thank you for the joy. all the best to you and yours,

    Tony

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     Post Posted: Sat May 19, 2018 11:40 pm 
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    Andjay wrote:
    However you want to proceed, I want you to know that it's YOUR call. This is YOUR life, YOUR recovery, and you get to call the shots.


    Unfortunately, we are only just now learning how untrue that statement truly is. We do not get to call the shots. There are protocols that doctors are forced to follow called “standards of care”. If I insisted on being given a specific type of treatment, even an FDA approved treatment, but the doctor disagrees, I cannot receive that treatment. Medical protocol literally ties the hands of the layman. Obviously, for our own good, right?

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     Post Posted: Mon May 21, 2018 8:17 am 
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    I was successful in using "standards of care" to get my dental insurance (on appeal) to pay for a porcelain inlay instead of their initial offer to pay for a filling. When more than 50% of the occlusion surface / cusp is removed, an amalgam filling is insufficient to maintain the integrity of the tooth.

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